Our son had a stroke at or around the time of birth, but we didn’t learn this until he was 6months old. The signs were there - favoring his left hand, right hand was always in a tight fist, crying uncontrollably for lengthy periods of time - and although I brought these things up several times, it was dismissed or thought to be colic.
That all changed on the evening of Dec. 10, 2018. Our son had his 6 month immunizations that afternoon and then that evening, I noticed these rhythmic/pattern like crunching movements along with eye rolls. My husband and I called the after hours pediatric care and they said he’s probably just tired, but advised us to keep an eye on him. My ‘mommy instinct’ knew it was more than that and I called our pediatrician the very next morning. They scheduled a 30minute EEG later that week.
After getting those results, we were told to head straight to Riley’s Children’s Hospital in Indianapolis. Our son was admitted and had a 24hr EEG, which determined he was having Infantile Spasms. He, then, had an MRI, which showed the stroke damage which had occurred 6months (or so) prior. Thankfully, our son’s Infantile Spasms were stopped quickly with high dose steroids. He, then, began multiple therapies within two months of his diagnosis. He currently has PT, OT, and Speech Therapy and continues to show great progress!
Our son will be 2yrs old at the end of this month (May). He is a true warrior and miracle from God. He can walk/run, say/sign several words, use his right hand to clap/blow kisses (and more). He also loves to dance with his two older sisters and play outside.
First and foremost, we are thankful to God for being with us every step of the way on this continuous journey. We have also been blessed with amazing family, friends and therapists who have been our son’s biggest cheerleaders. Knowledge is power and my hope is that by sharing our son’s story, others will learn stroke awareness AND if they are blessed with a stroke warrior that they know they are never alone.
That all changed on the evening of Dec. 10, 2018. Our son had his 6 month immunizations that afternoon and then that evening, I noticed these rhythmic/pattern like crunching movements along with eye rolls. My husband and I called the after hours pediatric care and they said he’s probably just tired, but advised us to keep an eye on him. My ‘mommy instinct’ knew it was more than that and I called our pediatrician the very next morning. They scheduled a 30minute EEG later that week.
After getting those results, we were told to head straight to Riley’s Children’s Hospital in Indianapolis. Our son was admitted and had a 24hr EEG, which determined he was having Infantile Spasms. He, then, had an MRI, which showed the stroke damage which had occurred 6months (or so) prior. Thankfully, our son’s Infantile Spasms were stopped quickly with high dose steroids. He, then, began multiple therapies within two months of his diagnosis. He currently has PT, OT, and Speech Therapy and continues to show great progress!
Our son will be 2yrs old at the end of this month (May). He is a true warrior and miracle from God. He can walk/run, say/sign several words, use his right hand to clap/blow kisses (and more). He also loves to dance with his two older sisters and play outside.
First and foremost, we are thankful to God for being with us every step of the way on this continuous journey. We have also been blessed with amazing family, friends and therapists who have been our son’s biggest cheerleaders. Knowledge is power and my hope is that by sharing our son’s story, others will learn stroke awareness AND if they are blessed with a stroke warrior that they know they are never alone.
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