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A Final Farewell and Thank You for all the years!

7/30/2020

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Dear PSW Community,
 
We are down to our last day of operations at the office we want to take this opportunity to give our thanks and share our final updates on a few exciting announcements we have.

Above all, THANK YOU to our warriors and their families. You’re the reason we started PSW and we have been honored to hear your stories and serve you through our programs over the years. Thank you to our volunteers and board members, past and present, as well as our medical advisory team! We are so thankful for your work and support behind the scenes. Thank you to our donors and hospital partners, you have made what we do possible from the start. And finally, thank you to Kaysee and Trapper Hyatt, our founders, for believing change was possible and setting out to make it so. Kaysee has served as our president, and more recently our executive director. Kaysee, thank you for your time, talent, expertise and passion to make change.

It’s with excitement that we share our final updates with you upon our closure today:
  • A final gift will be made to the Pediatric Stroke Fund at Seattle Children’s Hospital (SCH) totaling $100,000. The team at SCH will continue to provide excellent support and care for families as well as further clinical pediatric stroke research and education for years to come. Click here to read an update and thank you from Dr. Amlie-Lefond. If you feel lead and would like to make a donation directly to the Pediatric Stroke Fund as a legacy gift to PSW, you can do so here.
  • Secondly, we are humbled to announce that The Pediatric Stroke Warriors Family Toolkit will continue to be published and made available through the International Alliance for Pediatric Stroke Organizations (IAPS).

A note from the Mary Kay Ballasiotes - Executive Director with IAPS

"The recent news of Pediatric Stroke Warriors closing is a loss for the childhood stroke community. Over the years since PSW was created, we have proudly collaborated with them on many initiatives and projects. We are so honored that PSW has asked us to take ownership of their essential Family Tool Kit. This book has been an incredible help for so many families, and we will make sure it is available for everyone in the future. IAPS will make an announcement when the updated version is available via our website, Facebook, Twitter and our newsletter, so please make sure to connect with us!

Although we will miss hearing from our friends at PSW, their incredible support, resources, and work has made a lasting impact on the pediatric stroke community. Thank you Pediatric Stroke Warriors for being the guiding light for pediatric stroke families worldwide! "


  • Lastly, while all of our daily operations and programs will be completed on July 31, our website, www.pediatricstrokewarriors.org, will remain available through 2020. Our continued hope is that these resources and information will be available to serve families during this season. ​

Please know that although we made the difficult decision to close PSW, it does not change the amazing impact we have had through the years. It’s with heartfelt thanks and a sense of celebration for all that we have been able to accomplish that we say goodbye. 

Sincerely,

Lyndsey Watson
President of Pediatric Stroke Warriors, on behalf of the PSW Board

Since it's launch, PSW has made great impact!

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Pediatric Stroke Warriors Family Toolkit Transition

7/29/2020

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We want to take this opportunity and share our utmost appreciation to the International Alliance for Pediatric Stroke, our years of collaboration in efforts and their ongoing commitment to the Pediatric Stroke Community. Today, we are honored to announce that our Pediatric Stroke Warriors Family Toolkit will have a new home, and a continued impact as we transition this resource to IAPS.

A message from International Alliance for Pediatric Stroke

Over the years since Pediatric Stroke Warriors was created, we have proudly collaborated on many initiatives and projects. We are so honored that PSW has asked us to take ownership of their essential Family Tool Kit. This book has been an incredible help for so many families, and we will make sure it is available for everyone in the future. IAPS will make an announcement when the updated version is available via our website, Facebook, Twitter and our newsletter, so be sure you connect with us!

Although we will miss hearing from our friends at PSW, their incredible support, resources, and work has made a lasting impact on the pediatric stroke community. The International Alliance for Pediatric Stroke will continue to advocate on behalf of children impacted by stroke. In addition to the Tool Kit, we will have some exciting opportunities for families in the future. We are here for you as we navigate this journey together!

Sincerely,

Mary Kay Ballasiotes
Executive Director
International Alliance for Pediatric Stroke
iapediatricstroke.org
[email protected]

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Pediatric Stroke Warriors Closure

7/6/2020

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The impact of COVID-19 on everyone, is unprecedented. Despite our significant impact and outpouring of support over the years, we have had to acknowledge that with the loss of our largest fundraiser and personal capacity to serve as a majority volunteer led organization, we simply cannot sustain PSW. As the Founder and Director of Pediatric Stroke Warriors, this decision to close our doors effective August 1st, did not come easily.

 
When our daughter was born, we felt the isolation of a diagnosis we never knew existed. I can clearly recall what it was like to fight for answers and resources and come up empty, so many years ago. My husband and I founded PSW in 2015 and took our personal experience as a family who navigated this journey with their child and grew it into an actionable organization focused on kids. What began as sharing our family’s story to elevate awareness and connection for other families, quickly grew into the organization we are today. Some life experiences can change you to do better. To do more. To sacrifice a part of you to be a part of change for others. I have been humbled by this opportunity to be part of that change for so many.

 
On behalf of our board and my family, I share my deepest gratitude to all who have been so supportive of this organization and of me, personally, over the last 5 years. Without the dedicated team of board members, volunteers, donors, and community partners, this organization would not have been as strong or vibrant as it was. Through our fundraising efforts and the generosity of our donors, over the last five years, we have raised and allocated over $640k to serve the pediatric stroke population – which is so powerful!

 
Our programs served an undeniable purpose - whether it was through early outreach to families with our hospital Warrior Bags and Brave Boxes, providing financial assistance with our therapy grants, or supporting a family’s immediate needs along with research through our partnered Stroke Fund at Seattle Children’s Hospital – we made a difference together!  It is every small organizations dream to have that kind of impact in such a short amount of time. I am proud of this and closing our doors does not change that. THANK YOU to everyone who has made this possible with us through the years.
 
 
Logistics are valuable, and we will continue to share updates over the weeks to come. It is important to note that due to COVID-19 and current Washington State restrictions, our physical office space has been closed since March and many of our programs have already been on pause. We are committed to fulfilling our remaining therapy grants on behalf of our families, to our partner clinics. We have also made the lasting decision to allocate all our remaining assets as a Legacy Gift to the Stroke Fund within the Pediatric Vascular Neurology and Stroke program at Seattle Children’s Hospital. We estimate this will be near $100,000 and we take incredible pride in knowing that support for families and research will continue in our absence within many of our partnered organizations. 
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As you absorb this information, please know that I am here to listen and process your questions, concerns, and thoughts. We are a culture of people and stories. Celebrating the story of an organization that is about to close is an important tradition that is all too often forgotten. Please feel welcomed to contact us in the coming days and weeks.

 
I speak on behalf of all of us with PSW, that without a doubt, we will forever be inspired by the thousands of children whose stories we have been a part of and the undeniable resilience we recognize that can only come with being a Pediatric Stroke Warrior.

 
With the heartfelt sincerity, 

Kaysee Hyatt

Founder & Director of Pediatric Stroke Warriors
[email protected]
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