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Pediatric Stroke Warriors Closure

7/6/2020

9 Comments

 
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The impact of COVID-19 on everyone, is unprecedented. Despite our significant impact and outpouring of support over the years, we have had to acknowledge that with the loss of our largest fundraiser and personal capacity to serve as a majority volunteer led organization, we simply cannot sustain PSW. As the Founder and Director of Pediatric Stroke Warriors, this decision to close our doors effective August 1st, did not come easily.

 
When our daughter was born, we felt the isolation of a diagnosis we never knew existed. I can clearly recall what it was like to fight for answers and resources and come up empty, so many years ago. My husband and I founded PSW in 2015 and took our personal experience as a family who navigated this journey with their child and grew it into an actionable organization focused on kids. What began as sharing our family’s story to elevate awareness and connection for other families, quickly grew into the organization we are today. Some life experiences can change you to do better. To do more. To sacrifice a part of you to be a part of change for others. I have been humbled by this opportunity to be part of that change for so many.

 
On behalf of our board and my family, I share my deepest gratitude to all who have been so supportive of this organization and of me, personally, over the last 5 years. Without the dedicated team of board members, volunteers, donors, and community partners, this organization would not have been as strong or vibrant as it was. Through our fundraising efforts and the generosity of our donors, over the last five years, we have raised and allocated over $640k to serve the pediatric stroke population – which is so powerful!

 
Our programs served an undeniable purpose - whether it was through early outreach to families with our hospital Warrior Bags and Brave Boxes, providing financial assistance with our therapy grants, or supporting a family’s immediate needs along with research through our partnered Stroke Fund at Seattle Children’s Hospital – we made a difference together!  It is every small organizations dream to have that kind of impact in such a short amount of time. I am proud of this and closing our doors does not change that. THANK YOU to everyone who has made this possible with us through the years.
 
 
Logistics are valuable, and we will continue to share updates over the weeks to come. It is important to note that due to COVID-19 and current Washington State restrictions, our physical office space has been closed since March and many of our programs have already been on pause. We are committed to fulfilling our remaining therapy grants on behalf of our families, to our partner clinics. We have also made the lasting decision to allocate all our remaining assets as a Legacy Gift to the Stroke Fund within the Pediatric Vascular Neurology and Stroke program at Seattle Children’s Hospital. We estimate this will be near $100,000 and we take incredible pride in knowing that support for families and research will continue in our absence within many of our partnered organizations. 
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As you absorb this information, please know that I am here to listen and process your questions, concerns, and thoughts. We are a culture of people and stories. Celebrating the story of an organization that is about to close is an important tradition that is all too often forgotten. Please feel welcomed to contact us in the coming days and weeks.

 
I speak on behalf of all of us with PSW, that without a doubt, we will forever be inspired by the thousands of children whose stories we have been a part of and the undeniable resilience we recognize that can only come with being a Pediatric Stroke Warrior.

 
With the heartfelt sincerity, 

Kaysee Hyatt

Founder & Director of Pediatric Stroke Warriors
[email protected]
9 Comments
Holly Smith
7/6/2020 12:15:20 pm

Please don’t shut down, you do a lot of good for people. Can you have another t-shirt sale?? Everyone loves t-shirts!!!
I don’t want you to close!!

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Jessica DeCicco
7/6/2020 12:32:39 pm

Ill miss you thank you for helping us

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Amy Vazquez
7/6/2020 12:55:55 pm

I am so grateful to have the support of this organization for the last 2 years. You have supported me and helped me overcome so much for my family and I. I will never stop advocating. I sure hope we can keep in touch with you and especially your beautiful daughters journey. xoxo

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Michele Norman link
7/6/2020 01:16:38 pm

Thank you for all your support. You will sorely missed. God bless you all.

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Abbe
7/6/2020 01:23:14 pm

Thank you, from the bottom of my heart, for all you have done for our stroke warriors. I can't begin to imagine how difficult this decision was. It saddens me, but yet I find happiness feeling that you are at peace with it. May God continue to bless you.

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Keeble family
7/6/2020 05:37:46 pm

It is so sad for our family to see this organization close. You were the first ones there for us when our son Michael was diagnosed with stroke at only a few days old in the NICU at Children’s Hospital of Philadelphia. Your Warrior Box helped us to know we were not alone. It meant so much to us as we absorbed the news of the diagnosis. Michael will forever be our Stroke Warrior and we are very grateful to this organization. Thank you and best wishes for you and your family! Know that as you leave this behind, you have touched so many like us!

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Ken Anderson
7/10/2020 03:04:10 pm

Having been a part of your lives for many years, I am beyond proud to call your family my friends. The lives you have touched and the impact you have had go beyond words...you and Trapper are amazing; thank you for all you have done. We love you and support you unconditionally!

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Maggie Andersen
7/14/2020 06:34:12 am

So sorry to hear about the closing. When my son Mickey suffered his stroke at birth and was in the NICU for weeks recovering, he coined the nickname “Mighty Mic.” It took me months before I was brave enough to search for online support groups. Come to find there wasn’t too many to look into but when I did come across Pediatric Stroke Warriors and their slogan “Be Brave. Be Fierce. Be MIGHTY.” I knew Mighty Mic and I found our place. The comfort in that we weren’t alone has helped us immensely over the last few years. I wear my wrist band daily and have placed a final order to stock up for the future. So even though this group is closing, my Mighty Mic and I plan to carry it’s cause and awareness forward. Thanks to everyone here for your support!!! 💜🙏🏻💪🏻

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Carissa
8/12/2020 09:09:14 pm

I, like many others I'm sure, found your organization to be a comfort in a sea of chaos. There isn't much information about pediatric strokes, especially, I have found, intraoperative strokes. There is much more about heart surgery strokes than brain surgery strokes, and even that is minimal. To have found people who offered support, resources, and connection was so meaningful for me on those nights I stayed up researching different combinations of words to try and milk more information about what this all meant for my baby, from the internet. The doctors don't tell you much, as far as what to expect in future because I guess its unknown. So the hope you offered was immeasurable on our journey. It helped me to not feel so alone in this.Thank you

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