Delaney was born October 8, 2019. Several hours after birth she experienced an episode where she stopped breathing. The nurses brought her to my room and explained she had experienced this and that they had put her on a monitor. About an hour later this happened again. The nurses rushed her out of my room and in to the nursery. I put my robe on and went out to see what was going on. When I stepped out, I saw them using a bag valve mask to get her to breathe again while another nurse phoned my OB. Within 20 minutes my OB was walking in explaining Delaney was going to be taken by helicopter to a nearby hospital that had a NICU.
We truly had no idea what was causing her to stop breathing and it was absolutely terrifying. We were hurrying to get all of our stuff packed and spend time with our newborn daughter while they poked her over and over again and prepped her for her flight. I felt absolutely devastated knowing I couldn’t ride with her. Watching her be taken down the hall in her “box” was one of the most heartbreaking experiences. We honestly didn’t even know if we would ever see her alive again.
We rushed to the surrounding facility while trying to figure out what could possibly be happening to our daughter. I had to give permission over the phone for them to perform a spinal tap and prep her for other tests and blood draws. I was so helpless knowing I couldn’t get there fast enough to be able to be with her while she endured all the different tests. When we arrived at the NICU we were surrounded by a huge care team of physicians, nurses, radiologists, lab personnel, etc. We wanted answers, but unfortunately we had none. They were performing all kinds of tests and doing everything they could to figure it out all while her apnea episodes continued.
After being in the NICU for a couple of days, we finally had an answer. They had performed and MRI and found Delaney had experienced a stroke either just before or just after birth. They found she also had bleeding on her brain along with her severe sleep apnea. They put her on anti seizure medications as a precaution and continued running tests to rule things out and diagnose other things that could possibly be going on. The care she received was phenomenal. They told us they didn’t think Delaney would have any issues with growth or development. I didn’t understand how given her diagnosis this could even be possible. But Delaney is 6 months old and on top of all development. She is reaching all milestones. She is happy, laughing, smiling, talking, crawling, doing everything all 6 months old should be doing.
I will forever be grateful for all care received from our amazing OB and the wonderful nurses at our birth center, as well as the team in the NICU we were transferred to. They all had a major hand in saving Delaney’s life. We will also be forever grateful to Early Intervention Physical Therapy with helping to keep her on track and excelling.
We truly had no idea what was causing her to stop breathing and it was absolutely terrifying. We were hurrying to get all of our stuff packed and spend time with our newborn daughter while they poked her over and over again and prepped her for her flight. I felt absolutely devastated knowing I couldn’t ride with her. Watching her be taken down the hall in her “box” was one of the most heartbreaking experiences. We honestly didn’t even know if we would ever see her alive again.
We rushed to the surrounding facility while trying to figure out what could possibly be happening to our daughter. I had to give permission over the phone for them to perform a spinal tap and prep her for other tests and blood draws. I was so helpless knowing I couldn’t get there fast enough to be able to be with her while she endured all the different tests. When we arrived at the NICU we were surrounded by a huge care team of physicians, nurses, radiologists, lab personnel, etc. We wanted answers, but unfortunately we had none. They were performing all kinds of tests and doing everything they could to figure it out all while her apnea episodes continued.
After being in the NICU for a couple of days, we finally had an answer. They had performed and MRI and found Delaney had experienced a stroke either just before or just after birth. They found she also had bleeding on her brain along with her severe sleep apnea. They put her on anti seizure medications as a precaution and continued running tests to rule things out and diagnose other things that could possibly be going on. The care she received was phenomenal. They told us they didn’t think Delaney would have any issues with growth or development. I didn’t understand how given her diagnosis this could even be possible. But Delaney is 6 months old and on top of all development. She is reaching all milestones. She is happy, laughing, smiling, talking, crawling, doing everything all 6 months old should be doing.
I will forever be grateful for all care received from our amazing OB and the wonderful nurses at our birth center, as well as the team in the NICU we were transferred to. They all had a major hand in saving Delaney’s life. We will also be forever grateful to Early Intervention Physical Therapy with helping to keep her on track and excelling.
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